Ellie's been stubborn about talking.
I've mentioned her massively
impressive non-verbal communication skills in the past, and trust me, I'm not exaggerating. The kid can get her point across better than most adults I know.
But, of course, this emphasis on the non-verbal communication is in direct proportion to the lack of verbal communication.
I think she doesn't recognize a need for additional verbal skills, since she happily communicates all she needs to without the aide of spoken language. In fact, for a toddler who speaks so little, she has a shockingly few tantrums or breakdowns about it. She seems quite content with her speech abilities. Which makes it difficult to make her talk more :-)
I've been concerned about her lack on interest in talking, but not overly so . . . but lately she's started 'dropping' words. Things she used to say, but just doesn't anymore. She's also gotten VERY lazy about her pronunciation of words she used to say. Dropping speech at her age is a huge indicator of problems like autism, but nobody who's ever been within a thousand feet of Ellie would suspect the kid has autism. But, it's had me a bit worried to watch her digress. It's, well, disconcerting. You don't expect your nearly two year old to make backwards progress in any area, and it ain't fun to watch either. (Plus, I've been stressing myself out thinking, "She has to talk before the new baby comes!" But, at the same time, that's misplaced fear, as she communicates just fine, and we're not really in dire trouble or anything just 'cause she doesn't use a lot of words yet.)
I've spent the last couple months debating how much this worries me. (As background, there were several people very worried about Annie's speech abilities, and she was also labeled a 'late talker' by most who knew her. And look at the kid now. To think we ever worried! So, with Ellie I've been much more relaxed about it -- until it just started to get to be too much, and the Mom/Worry genes kicked in and I started to stress.) At times, in all honesty, it's made me break out in tears. As much as I hate to compare and contrast kids, 'cause it does nobody any good, I would sometimes watch videos of Annie at a younger age using, easily, a dozen or so more words than Ellie ever has, and tears would start to flow. (Of course, Ellie can scale heights, jump and run in ways Annie couldn't have imagined at this age. All kids are different, I know that. On an intellectual level.)
So, we talked to a Speech Therapist at one of the schools my Mom works at, just to get her opinion about it. She said that it seems like maybe she's a bit stubborn (sounds familiar), and that especially since Annie took a bit longer to get talking (and look at her now), there probably wasn't anything to worry about, but that I could call the Early Childhood Intervention people in the Jordan School District and talk to them. So, I called them last week, talked to an intake person and got her an appointment.
So, today, the Speech Pathologist came out to our house and evaluated Ellie. They were immediately smitten with one another. :-) Ellie had the time of her life playing games and such with the therapist, and the lady could not stop gushing about how funny, personable and just off the charts intelligent Ellie is. They tested her in seven areas.
There's a breakdown of all the numbers and such, but it's a tad complicated in the translation, so basically:
Her gross motor skills were very impressive. (Poor short Ellie was dinged on this a little, 'cause she doesn't do stuff like walk down stairs -- darn her stubby little legs that can't span whole stairs!)
Fine motor skills were at the very top of the charts for her age (this was all threading beads and stuff . . . the things she likes to do when she 'helps' her big sister make necklaces and stuff.)
Cognitive (her attention/learning) was great, on the high end of the normal range for her age.
Her receptive language (what she understands/comprehends) was also at the very top of the charts her her age. The therapist commented that she understood everything she said, and her vocabulary of understood words was incredibly impressive.
Her self help skills (problem solving, meeting her needs, getting what she wants, taking care of herself) was completely off the charts (basically the therapist kept testing her until she reached the four year old range, and just stopped testing her then.)
Her social/emotional skills also off the charts (again, she just stopped doing the tests once she hit about a four year old testing range).
At this point, the therapist is telling me she can't believe how smart Miss Ellie is (she called her Miss Ellie the whole time, it was really endearing), how she just understands absolutely everything, the vocabulary she understands is huge, how impressed she was with how well Ellie follows multiple step commands, how she can match anything and sort and organize and stack and everything else at levels well above her 22 months. How quickly she was catching on and learning new things. I was starting to think she was gonna say something like, "Um, thanks for wasting my time bringing me all the way out to your neck of the woods! What made you think this child would possibly need our help?!
Then the kicker.
Her Expressive Language Usage. She scored a 1. I don't know if a 0 is a possibility on the scale or not, but I'm thinking 1 was about as low as it gets.
Yeah, she's
way behind on where she should be for her age in verbal language.
She's very lazy in her vowel sounds, and uses only about half the vowel sounds she should. She used a lot of consonant sounds, but not as many as she should, and she is also lazy in how she pronounces many of them and combines even fewer. (Like if a word has two different consonants, she'll just use one of them -- which is why horse is just 'es', etc.) There could be something actually wrong that's making these sounds hard for her to make/process/hear/etc. Or, she could just be stubborn and lazy. She doesn't have a lot of drive to verbally communicate, because she's comfortable with what she's able to communicate now. So, at this point the therapist wasn't sure what's causing the problem. We'll go in now for extensive hearing and other physical tests at the actual doctor's office at the district, and go from there.
Because of her score in this one area though, she does, in fact, qualify for in-home services. So, starting next week (after the physical) we'll have someone coming in and working with her. We'll start off just focusing on her making new sounds (not words). The therapist was saying she's pretty sure when whatever it is that's holding back to speech is taken care of, that whole huge vocabulary should come spilling out and we can expect her to be talking pretty much in complete sentences . . . we just have to get the words out of her head first!
So, everything I thought was confirmed. My toddler is an off the charts brilliant little charmer who wraps adults around her little finger. (The therapist was unbelievably smitten with her -- she could not stop gushing about how smart and charming she was.) But, that something's wrong in this one area. Maybe even really wrong?
The therapist left, and on one hand I felt like I was on cloud nine. What I'd thought was true -- she's intelligent and understands us and communicates amazingly, but she's not talking the way she should. I'm not worrying unnecessarily about this issue, but at the same time, my kid is an exceptional little toddler (they all are though). On the other hand, seeing the black and white of a score like a '1' was a blow to the chest that knocked the wind out of me. I mean, I knew she wasn't talking like she should be . . . but to not even make it on the charts. To be verbally communicating on the level of, what, a 15 month old? I was left with questions like, "Is something really wrong with her? Can she
not make these connections? Or is she just stubborn, slow or just not ready in this one area?" And most importantly, "Can I be OK with this?"
I've always been a firm believer that all children are gifted. Some count early, some are budding artists, some can do things physically with their bodies that others don't accomplish until much later. Some are into numbers, some have fantastic memories. Some are amazingly empathetic and kind, much more so than their peers. But all children, have something they not only excel at -- but something that makes them truly gifted. With Annie I checked those stupid 'developmental charts' monthly. With Ellie, I threw 'em out -- 'cause they don't matter. Ellie's a gifted child. Like they all are. I don't need to know exactly where she falls on some chart in each and every category. But watching my child not even make it on the chart for something as basic as speech, kinda shakes things up. Brings into question my whole view of childhood development. Can I practice what I preach? Can I easily make peace with such a significant developmental delay? Will it bug me? Will I be able to look past it and see all the amazingness and not get hung up on a 'below level' diagnosis?
Well, here we go. I'll have help. I'll have specialists giving me advice on how to encourage Ellie. Which is what I was wanting most of all when I started the intake process. But in the end, we'll still just mainly be waiting. For whatever it is to 'click' for her -- whether it's a physical, emotional, lazy or stubbornish issue -- but at least I'll have a highly trained team of professionals telling me how freaking adorable she is the whole time. :-)
Wish us luck! :-)